Understanding Autism in India: A Mixed-Methods Study of Parent’s Perspectives
Project Overview
The project was aimed to explore the experiences and mechanisms that contribute to optimizing developmental outcomes in children on the autism spectrum from the perspectives of parents. This research was conducted in collaboration with researchers from the University of Kansas and employed an explanatory sequential mixed-methods design. The study resulted in three papers focusing on parents’ concerns, family structure and social support, and autism-related stigma and self-reliance. The implications of this research included advancing evidence-based strategies, improving understanding, identifying barriers, reducing stigma, and empowering families. Currently, I am leading the development of a manuscript with a team of research and community-experts for Autism Journal to disseminate these findings.
Roles and Responsibilities
As the Principal Investigator (PI) for the project Understanding Autism in India: A Mixed-Methods Study of Parents’ Perspectives, I oversaw all aspects of the study, including:
Developing and refining research questions and hypotheses
Designing the study and selecting appropriate research methods
Ensuring compliance with ethical guidelines and regulations
Collecting and managing quantitative and qualitative data
Supervising and mentoring junior researchers and students
Coordinating with collaborators and partners for data analysis and integration
Disseminating research findings through presentations, talks, and publications
Presentations
Suswaram, S., Dababnah, S., Sundarrajan, M., Bhupathiraju, T., Sun, K., Ghandi, R., Meyer, R., Bhattashali, A., Cheatham, G., & Long, K. (2024, May). Autism-related stigma experienced by parents of minimal speaking and verbal autistic children in India. International Society for Autism Research (INSAR) Annual Meeting, Seattle, WA.
Suswaram, S., Liu, T., Perelmutter. B., Bhattashali, A., & Cheatham, G. (2023, May). Factors Affecting Parental Concerns: Evidence from India. International Society for Autism Research Annual Meeting (INSAR), Älvsjö, Sweden.
Bhattashali, A., Cheatham, G., Suswaram, S., & Oh, J. (2022, February). Parents’ Perceptions about Inclusive Education in India: A Mixed-Method Study. Conference on Research Innovations in Early Intervention, San Diego, CA.